My Latest First Anniversary



The other day it occurred to me, with a smirk of satisfaction, that I haven't had a seizure for a year. Of course, these anniversaries are meaningless in a way. I could have one ten, twenty, thirty seconds from now and be right back where I started. I have gone for longer than a year without seizures too. Once I lasted eighteen months and thought I had beaten the condition, to whatever extent a permanent condition can be beaten. But last year, in the space of a few months, I had three very bad seizures; once I might even have died had my partner not been with me when it happened. So I will allow myself a small moment of celebration.

I have not gone without my brushes with the condition this year. I've had multiple warnings -- auditory and visual hallucinations that can precede a seizure. They often came when I was over-tired, or when I watched television in the dark, or looked at a computer screen for too long without a break. They came when I was feeling under pressure too. Only yesterday, on the bus going to a meeting I didn't want to attend, the warning happened, and as usual I thought a seizure might be seconds away. Fortunately, it wasn't; I just had to sit through the meeting with a headache and the nausea that warnings -- one might call them false warnings -- leave you with.

Today, on my latest first anniversary, I am feeling good, if a little tired after waking up early and getting no fresh air since. Will I go another day without having a seizure? Will I go another month? Another year? I don't expect anything from my condition except surprises, so we'll see what happens. As Raymond Carver once (beautifully) wrote, as part of a longer poem:

After that it was all gravy, every minute
of it, up to and including when he was told about,
well, some things that were breaking down and
building up inside his head. “Don’t weep for me,”
he said to his friends. “I’m a lucky man.
I’ve had ten years longer than I or anyone
expected. Pure Gravy. And don’t forget it.”


'Gravy' by Raymond Carver


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